tag:blogger.com,1999:blog-35770630.post5362071002685819877..comments2023-10-21T05:01:00.515-07:00Comments on ...as good as it gets?: full disclosure - very long postCarolhttp://www.blogger.com/profile/11168704988026789910noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-35770630.post-59683967937928311972009-01-14T20:46:00.000-08:002009-01-14T20:46:00.000-08:00You did a wonderful job of disclosing this informa...You did a wonderful job of disclosing this information to your family. Your post was so thorough and thoughtful. I wish you the best as you get Danny the help that he needs to thrive. Although in some sense I'm sure it's frustrating not to be able to identify a cause of the delay, I'm so glad that the tests did not uncover a serious medical condition. <BR/><BR/>I know you said that Danny hadn't had an MRI--just wondering if he had a CT? A CT usually doesn't require general anaesthetic. I only ask because one of my 13 month old twins recently had a CT which showed a cyst on his brain. Our situtation is different than yours--the CT was ordered b/c his head circumference increased rapidly. No developmental concerns as of now. Anyway, we were able to do the CT with a small amount of oral sedative and then I restrained him while he was getting the CT--it only took about 2 minutes, so it worked fine. Unfortunately, when the CT came back with the abnormality, we had to do an MRI, which did require general. Thankfully all went fine. I just bring all of this up because now that I've had to educate myself about these types of cysts, I know that they can in some cases impact development.<BR/><BR/>It sounds like you have a very capable team of doctors/hospitals at your disposal and that you and your husband have been strong advocates for Danny. He's a very lucky little boy to have you as parents. Thank you for sharing your story with us as well...<BR/><BR/>DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-35770630.post-27430095430670266082009-01-14T02:54:00.000-08:002009-01-14T02:54:00.000-08:00Wow. Very comprehensive. Certainly can't think o...Wow. Very comprehensive. Certainly can't think of anything more to ask.<BR/><BR/>As you say, there does seem to be some positive - it's mild, and he's making progress. Fingers crossed he catches up in time. Meanwhile, he certainly is seeing all the right people.<BR/><BR/>Also, my word verification is "cuddle". Thought you might like to know ;)<BR/><BR/>BeaBeahttps://www.blogger.com/profile/11877513815828460269noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-26165945769130768982009-01-13T11:15:00.000-08:002009-01-13T11:15:00.000-08:00wow, that is all so interesting. i don't mean to s...wow, that is all so interesting. i don't mean to sound trite, i realize it is much more than that to you, but you have learned so much. <BR/><BR/>i guess it would be hard now that they are at an age where you really have to start toddler-parenting, teaching callie what no means and beginning to lay the ground work for early discipline - it must be hard to know how to teach her what is expected of her when he's not ready for the same rules to apply. although i guess if he's not walking he doesn't get into the same kind of situations she's learning about, but have the experts given you any advice for how to balance basically having two babies at different development stages? i mean most moms wouldn't normally face parenting a 15 month old and an 8-10 month old at the same time - what a huge challenge!! you really are a supermom!!Sarahhttps://www.blogger.com/profile/01587725139301198392noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-25221708475867940782009-01-13T06:35:00.000-08:002009-01-13T06:35:00.000-08:00Thanks for the comprehensive post. Good luck with ...Thanks for the comprehensive post. Good luck with all of this and know that you are being great parents in doing exactly what he needs right now.<BR/><BR/>Love and light to you girl!cathttps://www.blogger.com/profile/15788508986252339771noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-50595100730761122152009-01-12T20:48:00.000-08:002009-01-12T20:48:00.000-08:00Wow, that is quite a post. I think you did a very...Wow, that is quite a post. I think you did a very good job of covering the bases. I'll tell you though, reading this post and all your others, I would never have considered autism. <BR/><BR/>You guys are doing a great job. The frustration with all of this must be so horrible for you. It is so much easier to deal with concrete tests, concrete answers, and concrete solutions. The program sounds great. I think I wish Jake could be in a preschool two hours a day two days a week. I'm impressedJaimiehttps://www.blogger.com/profile/00519005240715381712noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-38538920881508222742009-01-12T18:54:00.000-08:002009-01-12T18:54:00.000-08:00I work in an elementary school as a guidance couns...I work in an elementary school as a guidance counselor so I see the Early Intervention kids daily. They have made such tremendous progress since school has begun in September!<BR/><BR/>Danny is very lucky to have you as parents... so caring and resourceful (and of course you are so lucky to have HIM and Callie)! It seems like he is/will be receiving the best possible therapy for his delays. <BR/><BR/>Wishing you all a very happy and healthy New Year!Bethhttps://www.blogger.com/profile/13586352349140993131noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-40304702835318326182009-01-12T17:32:00.000-08:002009-01-12T17:32:00.000-08:00I am glad that there isn't anything more serious w...I am glad that there isn't anything more serious wrong with Danny. You have done your homework and I hope you will start to see the improvements soon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-35770630.post-10016723927747299032009-01-12T16:33:00.000-08:002009-01-12T16:33:00.000-08:00I just wanted to say my daughter (2 weeks or so yo...I just wanted to say my daughter (2 weeks or so younger than your twins) had a skull tumor. She had an MRI at 8 months and the surgery to remove it at 9 months. She was put out both times. It ended up being benign and all is well now. She just has a scar between her eyes. All that to say I was a mess over all that and this has got to be scary. I am thinking about you all.Kellyhttps://www.blogger.com/profile/10576933240686141039noreply@blogger.comtag:blogger.com,1999:blog-35770630.post-11678837395676746292009-01-12T12:00:00.000-08:002009-01-12T12:00:00.000-08:00what a great, comprehensive post! good job summar...what a great, comprehensive post! good job summarizing everything! i have commented before at various times, but ALWAYS read...as i've said, i'm an occupational therapist. i'm very impressed with your extensive pursuit of answers. sounds like you are being a SUPER advocate for danny! that's all any therapist can ask for! the doctors and therapists will be able to give you lots of suggestions that-if carried out consistently at home-can result in some major strides for little man. i'm not sure if it was excluded on purpose, or done and not mentioned, but did you have his vision tested as well? my daughter started wearing glasses at 22 months, so i know pediatric ophthalmalogists have ways of testing young ones. just one more avenue to explore. of course, not having seen his files/past medical history/test results, i am commenting based on what you have disclosed on your blog! again, i am so impressed by your tenacity! danny AND callie are so lucky to have you as their mommy!kelly whttps://www.blogger.com/profile/10374554072306755112noreply@blogger.com